‘World Embracer’ or ‘Embracer of the World’ is an amalgamation of the two words ‘Manaaki’ and ‘Ao’ and focuses on the most prominent ‘positive’ traits of people with Williams Syndrome – their kind spirit and endearing nature, their ability to empathise and forgive, and their care and selflessness. It is a deliberate focus away from a deficit model and has been co-created with Williams Syndrome whānau.
Williams syndrome (WS) is a genetic condition that is present at birth and can affect anyone. It is characterized by medical problems, including cardiovascular disease, developmental delays, and learning disabilities. These often occur side by side with striking verbal abilities, highly social personalities and an affinity for music.
The New Zealand Williams Syndrome camp was held in Whanganui and was the time we have been able to get together in four years. Read Sandra’s update on what we all got up to a camp.
Membership in the NZ Williams Syndrome Association includes individuals with Williams Syndrome, their families, friends, medical and educational professionals. Anyone interested in learning more about Williams Syndrome can benefit from membership. A major part of our association is to support families.
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