Official Investiture photo of Kit with the Governor General kindly supplied by  Woolf Photography, Wellington.

A tribute to Kit Crawford

In heartfelt tribute, we honour Kit for her unwavering commitment. In 1967, Kit and her family moved from the UK to New Zealand. After her son was diagnosed with Williams Syndrome, Kit became highly involved with the New Zealand Williams Syndrome Association. She took charge in 1989 and worked tirelessly to help the association grow. Kit would send handwritten letters and later switched to email to support families and share research findings. In recognition of her outstanding contributions, Kit was honoured with the Queen's Service Medal in 2015.

We express our deepest gratitude to Kit for her unwavering commitment, love, and selflessness.

Through her tireless efforts, she has touched the lives of countless families, leaving an enduring legacy of support and inspiration.


‘World Embracer’ or ‘Embracer of the World’ is an amalgamation of the two words ‘Manaaki’ and ‘Ao’ and focuses on the most prominent ‘positive’ traits of people with Williams Syndrome – their kind spirit and endearing nature, their ability to empathise and forgive, and their care and selflessness. It is a deliberate focus away from a deficit model and has been co-created with Williams Syndrome whānau.

What is Williams syndrome?

Williams syndrome (WS) is a genetic condition that is present at birth and can affect anyone. It is characterized by medical problems, including cardiovascular disease, developmental delays, and learning disabilities. These often occur side by side with striking verbal abilities, highly social personalities and an affinity for music.

New Zealand Williams Syndrome Camp 2023

The New Zealand Williams Syndrome camp was held in Whanganui and was the time we have been able to get together in four years. Read Sandra’s update on what we all got up to a camp.

How to join

Membership in the NZ Williams Syndrome Association includes individuals with Williams Syndrome, their families, friends, medical and educational professionals. Anyone interested in learning more about Williams Syndrome can benefit from membership. A major part of our association is to support families.


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© 2023 New Zealand Williams Syndrome Association